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Tyvaso DPI Earns FDA Priority Review Status

  • 4 years ago

The U.S. Food and Drug Administration (FDA) has granted priority review status to the application seeking approval of Tyvaso DPI...

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Get Ready for NORD’s Patient and Family Forum, Set for June 26-27

  • 4 years ago

Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual Living...

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Research Sheds Light on Potential Immune Changes in IPAH

  • 4 years ago

A combination of lung injury and increased activation of B-cells — immune cells responsible for antibody production — was sufficient...

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Reflecting on Accessibility, Ableism, and Chronic Illness During Pride Month

  • 4 years ago

Pride Month, observed each June, is a time to celebrate LGBTQ history, community, and life through events and parades. Curiously...

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Hospital Chaplains and Meditation Rooms Can Assist in Holistic Care

  • 4 years ago

Throughout my son Cullen’s pulmonary hypertension and heart-lung transplant journey, it has been my impression that hospitals try to treat...

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You’ve got more to do: Discover Remunity®, the latest pump for Remodulin® (treprostinil) Injection

  • 4 years ago

United Therapeutics is a company on a mission to continuously advance the care for pulmonary arterial hypertension (PAH). Remodulin® has...

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Prostacyclin Therapy, Expert Care Help in Pregnancy With PAH

  • 4 years ago

Despite a high-risk of serious complications, 10 women with moderate to severe pulmonary arterial hypertension (PAH) had a successful pregnancy...

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Text-based Intervention Helped Increase Physical Activity

  • 4 years ago

A three-month unsupervised health intervention based on a commercial activity tracker and motivational texts significantly increased daily step counts and...

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Each Birthday Brings Another Year and Another Miracle

  • 4 years ago

I still remember sitting on the couch with my mom on the eve of my 15th birthday. We were talking...

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Reminding Myself It’s Important to Unplug the Gadgets and Rest

  • 4 years ago

Do you find yourself scrolling through emails or multitasking when you sit down to rest? If you can’t seem to...

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PAPP, Measure of Cardiac Health, May Help to Spot Heart Failure Risk

  • 4 years ago

A new metric for assessing cardiac health, called pulmonary artery proportional pulse pressure or PAPP, could help to identify people...

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Rare 2030 Action Campaign Pushing for European Plan for Rare Diseases

  • 4 years ago

Eurordis opened a campaign, called Rare 2030 Action, that is seeking to establish a European action plan for rare diseases...