People with stable pulmonary arterial hypertension (PAH) can safely switch from Tracleer (bosentan) to Letairis (ambrisentan) without compromising their heart...
At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases within the...
Joining support groups — meeting people with common experiences and concerns who can provide emotional reassurance — for pulmonary hypertension...
Living with a chronic illness or rare disease definitely comes with a price tag. There are added expenses related to...
Stress was familiar to me long before my son Cullen was diagnosed with pulmonary arterial hypertension (PAH). Bruce Springsteen sings...
A study of rare gene variants has identified two new candidates — fibulin 2 (FBLN2) and platelet-derived growth factor D...
Dosing has begun in a clinical trial testing AER-901, Aerami Therapeutics‘ inhaled formulation of imatinib, which is being investigated as...
The need for adaptation in my life began so quietly I often didn’t notice the accommodations I required. I started...
Let’s celebrate! Come on, y’all, join me. Now, are you curious what we’re celebrating? This week, I celebrate two years...
The Center for Innovative Technology (CIT) GAP Funds has invested in OxiWear and its ear-wearable device designed to continuously monitor...
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes...
The U.S. Food and Drug Administration (FDA) has granted orphan drug designation to PT001, an investigational treatment for pulmonary arterial...