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+02596 5874 59857
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PulmoSIM Planning to Bring PAH Therapy, PT001, Into Clinical Testing

  • 4 years ago

PulmoSIM Therapeutics has joined with scientists at National Jewish Health hospital and Brown University to advance PT001, its investigational and...

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US Patient Groups Give Thumbs-Up to Rule Against Surprise Billing

  • 4 years ago

The National Organization for Rare Disorders (NORD) is applauding the Biden administration for announcing a rule to protect consumers from...

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What I Wish People Knew About My PH Journey

  • 4 years ago

“What’s the one thing you wish people knew about your transplant journey?” It’s one of the most thoughtful and thought-provoking...

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Inflammatory TIFA Protein Elevated in PAH

  • 4 years ago

A protein called TIFA is elevated in the blood cells of people with pulmonary arterial hypertension (PAH), suggesting this protein...

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Where My PH Diagnosis and Disability Identity Intersect

  • 4 years ago

I haven’t always identified as disabled, even though I lived with disability long before my initial pulmonary hypertension diagnosis in...

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Turning the Tables on Caregiving

  • 4 years ago

I will turn 50 in October, and I have ignored worsening symptoms alerting me to a possible health concern for...

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R-107 Stops PAH Progression, Reverses Hypertension in Rats

  • 4 years ago

An investigational therapy called R-107 completely stopped the progression of pulmonary arterial hypertension (PAH) in a rat model and may...

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Arterial Stiffness Early Marker of CTEPH After Embolism

  • 4 years ago

In people experiencing a pulmonary embolism, higher-than-normal arterial stiffness at the time of hospital discharge increased the risk of pulmonary...

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Partnership Aims to Lower Out-of-Pocket Costs for Rare Disease Meds

  • 4 years ago

AllianceRx Walgreens Prime, a specialty and home delivery pharmacy, is partnering with TailorMed, a healthcare technology company, to help lower...

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Learning My Limitations and Planning Ahead Makes Summer Enjoyable

  • 4 years ago

Something about sunshine boosts my mood. Do you find that to be true, too? For me, warmer months bring to...

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National Broadcast Series Focuses on PAH

  • 4 years ago

An upcoming series of educational virtual events for people with pulmonary arterial hypertension (PAH) and their caregivers will offer insights...

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Love Can Make a Broken Heart Feel Strong

  • 4 years ago

I have read that the heart is the hardest working muscle. If you’ve ever seen an echocardiogram of a heart...