Are you looking for the perfect present for a loved one managing a rare or chronic condition? As someone with...
Babies with persistent pulmonary hypertension of the newborn (PPHN) started quickly on treatment with prostaglandin E1 (PGE1) — which lowers...
People with pulmonary arterial hypertension (PAH) who have problems breathing while they’re sleeping — causing nocturnal hypoxemia, or oxygen levels...
When choosing a treatment regimen, people with pulmonary arterial hypertension (PAH) consider the impact on physical limitations and survival at...
When I was 5, my mom signed up my older sister for gymnastics. Watching from the side, I asked if...
I recently joined a rare disease advocacy meeting on Zoom, where the subject of the rising cost of living and...
Sophia Esteves balances on a rock in this photo from July. (Photos courtesy of Sophia Esteves) This is Sophia Esteves’...
Lower levels of apolipoprotein A-I (ApoA-I), a component of high-density lipoprotein (HDL), or “good cholesterol,” is a significant predictor of...
A protein called SPHK2 helps to drive pulmonary hypertension (PH) by changing the epigenetic profiles of cells in blood vessels,...
Samuele Butera photographed in September. (All photos courtesy of Samuele Butera) This is Samuele Butera’s story: Alexis. Gerry. Chelsea. Sophia....
Have you ever considered the surprising similarities between managing pulmonary hypertension (PH) and hosting Thanksgiving dinner? Like hosts who plan...
The Phase 2b portion of the IMPAHCT clinical trial, which is testing multiple doses of the inhaled imatinib formulation AV-101...