I recall waking up in a full-body sweat every time I had a nightmare as a child. The nightmare was...
For premature babies who are at high risk of pulmonary hypertension (PH) and other cardiovascular complications, consuming human breast milk...
The National Organization for Rare Disorders, known as NORD, was named an official charity partner of the 2021 TCS New...
Early treatment with Janssen’s Uptravi (selexipag) can halve the risk of disease progression for people with pulmonary arterial hypertension (PAH),...
The Walt Disney character Mary Poppins is practically perfect in every way. The film of the same name, based on...
A six-month at-home rehabilitation program can help improve respiratory muscle strength and physical endurance, while promoting better quality of life,...
The National Alliance for Caregiving, in partnership with Global Genes, has issued a free guidebook, available online, that offers resources...
My doctor called me following my recent MRI and delivered mostly good news: Everything looks stable, and my right ventricle...
Some say that you can never go home again. I find that such a sad notion, and I recently convinced...
Hey, y’all, I’m Jen. I love people. I enjoy talking, writing, and cooking. Coffee shops and food are my jam....
Routine blood screenings and non-invasive clinical tests may predict disease severity and mortality in people with pulmonary hypertension (PH), a...
Registration is now open for Global Genes‘ 2021 RARE Patient Advocacy Summit. This year’s hybrid event will be livestreamed from...