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New Data-sharing Program Aims to Speed Innovation in Rare Diseases

  • 3 years ago

A new U.S. initiative called Rare Disease Cures Accelerator–Data and Analytics Platform — dubbed RDCA–DAP — aims to accelerate treatment...

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Potential Way of Treating PAH Seen in Blocking Specific MicroRNA

  • 3 years ago

Blocking the activity of a small RNA molecule called microRNA-30a eased alterations in heart structure and blood vessel architecture in...

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Feeling Different and Wanting to Tell My Story

  • 3 years ago

The memory is impeccably clear in my mind, tied up tightly in the damp smell of chlorine. I’m sitting on...

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Learning to Love My Body Despite the Effects of PH

  • 3 years ago

Some days, as I catch a glimpse of the woman in the mirror, I find the reflection unrecognizable. The dark,...

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Early CTEPH Diagnosis Linked to Key Benefits, ‘Acceptable’ Costs

  • 3 years ago

Using a healthcare cost model, researchers in the Netherlands found that an early diagnosis of chronic thromboembolic pulmonary hypertension (CTEPH)...

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Order Up: Coffee With a Side of Diuretics to Manage My Fluid Intake

  • 3 years ago

What is better than the smell and taste of a freshly brewed cup of coffee? Maybe a second cup of...

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‘I Apologize Too Much! Sorry for That’

  • 3 years ago

I think people in the pulmonary hypertension (PH) community tend to apologize too much. We are so good at it,...

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Variation in Blood Vessel Anatomy May Raise Risk of CTEPH

  • 3 years ago

Many people with chronic thromboembolic pulmonary hypertension or CTEPH have a particular anatomical variation called May-Thurner anatomy, which may increase...

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Rare Inherited Mutations Shown to Cause Severe Childhood PAH

  • 3 years ago

Rare mutations in the ATP13A3 gene caused a severe inherited form of childhood-onset pulmonary arterial hypertension (PAH), a case study...

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Uplifting Athletes Tackles Funding for Rare Disease Research, Awareness

  • 3 years ago

Football and science seem to be disparate fields of play at first glance, but the nonprofit Uplifting Athletes is finding...

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COVID-19 Does Not Severely Affect Children with PH, Texas Study Says

  • 3 years ago

COVID-19 tends not to cause serious disease or death in children with pulmonary hypertension (PH), but its long-term consequences remain...

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Helpful Tips I Learned While Raising a Child With PH

  • 3 years ago

Parents sometimes joke that they wish their child came with an instruction manual. If there were a manual for kids,...