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Managing Acute Stress in the Days Before a Procedure

  • 3 years ago

As I prepare for a small diagnostic procedure this week, I’m noticing that my anxiety has skyrocketed. This is happening...

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Self-advocacy Is an Important Part of Patient Treatment

  • 3 years ago

Living with pulmonary hypertension (PH) is a constant challenge. If I’m not educating myself, I’m educating my family and friends,...

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Tenax Cleared to Start Clinical Testing of Oral Imatinib for PAH

  • 3 years ago

The U.S. Food and Drug Administration (FDA) has cleared Tenax Therapeutics to begin clinical testing of its new oral formulation...

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I’m Slowing Down Like My Life Depends on It

  • 3 years ago

I’ve always considered myself an “on” person, somebody who says yes to the boss or co-worker, friend or relative, thing...

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Rare Disease Diversity Coalition Awards $600K to Combat Disparities

  • 3 years ago

The Rare Disease Diversity Coalition (RDDC) awarded $600,000 in grants to ease the disparities faced by rare disease patients of...

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Celebrating 50 Years of Good Times and Bad

  • 3 years ago

Have you ever met someone and instantly felt like you’ve known them forever? I’ve experienced a rather twisted version of...

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Iron Infusion Aids Exercise, Overall Health of PAH Patients Lacking Mineral

  • 3 years ago

Infusion with Ferinject (ferric carboxymaltose) safely treated people with pulmonary arterial hypertension (PAH) and iron deficiency, easing disease symptoms, improving...

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Blocking Specific PI3K Protein Prevents PH in Animal Models

  • 3 years ago

Targeting a protein called p110a, a part of the PI3K family of enzymes, may be useful for preventing or even...

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Potential PAH Therapy, KER-012 Also Prevents Bone Loss in Rat Model

  • 3 years ago

A lab version of an investigational treatment for bone disorders and pulmonary arterial hypertension (PAH), KER-012 prevented bone loss in...

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What Do Caregivers and Succulents Have in Common?

  • 3 years ago

I appreciate the camaraderie among caregivers that I have experienced. We find understanding, support, and comfort from one another, no...

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Long Noncoding RNAs May Have Role in PH Onset, Rat Study Finds

  • 3 years ago

Seven long noncoding RNA molecules were found to be associated with the development of pulmonary hypertension (PH) in an early...

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Capture more good days with Orenitram® (treprostinil) extended-release tablets

  • 3 years ago

Living with pulmonary arterial hypertension (PAH) can be a real challenge. You may be frustrated by symptoms such as shortness...