Among people who have had a heart attack, those with pulmonary hypertension (PH) are at high risk of heart failure,...
The pandemic has been especially hard on people with disabilities, chronic illness, and rare diseases. Our community has faced ongoing...
Living with pulmonary hypertension (PH) requires a great deal of self-awareness and analysis to distinguish between PH symptoms and treatment...
Metabolic differences affecting energy production were observed in endothelial cells — the cells that line blood vessels — from patients...
“There were nights of endless pleasure. It was more than any laws allow.” Celine Dion’s “It’s All Coming Back to...
Since 2008, Rare Disease Day — the last day of February — has brought together patients, caregivers, family members, friends,...
Breathing reserve, a measure of lung function calculated during exercise, predicted survival in adults with congenital heart disease associated with...
My family loved dogs before I even came into the picture. My parents’ first child was a golden retriever named...
I’ll never forget the day I knew something was wrong with my body. It was sending me warnings. The symptoms...
A passive leg raise is equally as effective as exercise in measuring pulmonary vascular distensibility, a physiological marker to predict...
Did you know that since 1995, we have designated Feb. 6 as “Pay a Compliment Day” in the U.S.? Adrienne...
Identification of mutations in the ATP13A3 gene, which are associated with a severe form of pulmonary arterial hypertension (PAH), led...