The composition of certain bacteria in the gut is significantly altered and associated with greater disease severity in people with...
Pulmonary hypertension (PH) might look and sound like asthma, croup, chronic obstructive pulmonary disease, or a panic attack — but...
A rare disease puts an economic burden on the patients, families, and caregivers that it affects, and will no doubt...
A bilateral or double lung transplant can rescue heart function in children and adolescents with pulmonary hypertension (PH), a U.S....
The day you get called in for a transplant is a strange one, filled with all sorts of extreme experiences....
The words I wasn’t prepared to hear went something like this: “Mrs. Cueva, it seems that you have a rare...
The nonprofit RARE-X is creating an easily-accessible, centralized data hub for all rare disease patient data that can help researchers...
Hospital-based administrative data can be used to identify patients with pulmonary hypertension (PH) in medical records, according to a study...
I enjoy hot peppermint mochas year-round. Going through the Starbucks drive-thru is my favorite daily routine and the only line...
Levels of fractional exhaled nitric oxide (FeNO) — a measure of how much nitric oxide a person exhales — may...
It’s been nearly a year since the EveryLife Foundation for Rare Diseases released its expansive report finding the total economic...
Rac1, an enzyme involved in blood pressure regulation, is overly active in pulmonary artery smooth muscle cells (PASMCs) — the...