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I Almost Didn’t Write This Column About My COVID-19 Experience

  • 3 years ago

“I wish I could help you. I know how tough pulmonary hypertension is and what you’re going through — there...

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The Challenge of Making Friends as an Adult With PH

  • 3 years ago

Most people realize that living with a serious health condition can make it difficult to develop romantic relationships. The difficulty...

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The Day the Music Lived

  • 3 years ago

The emotions of an 11-year-old girl named Riley take on a life of their own in the 2015 Pixar movie...

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RaDaR Serves as Starting Point for Creating Rare Disease Registry

  • 3 years ago

Patient registries are a hot topic of rare disease research and many organizations are taking advantage of this resource by...

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Pregnant Women With Any PH Type at High Risk of Complications: Study

  • 3 years ago

Maternal and fetal complications are frequent across pulmonary hypertension (PH) groups, with about a third of patients experiencing an uneventful...

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Nourishing My Body While Living With an Illness

  • 3 years ago

While I cringe a bit at the term, I would definitely consider myself a foodie. Food Network often plays in...

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By Sharing Our PH Stories, We Can Offer Hope and Connection

  • 3 years ago

“The courage it takes to share your story might be the very thing someone else needs to open their heart...

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Obesity Can Damage Heart in Ways That Risk Pulmonary Hypertension

  • 3 years ago

Greater stiffness in the pulmonary arteries, those supplying blood from the heart to the lungs, and problems with the workings...

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#RAREis Representation Program Promotes Equity, Diversity

  • 3 years ago

Horizon Therapeutics has launched its #RAREis Representation program aimed at increasing diversity, equity, and inclusion among patients with rare diseases....

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Depression and Anxiety ‘Alarmingly’ High in PH Patients, Study Finds

  • 3 years ago

Depression and anxiety are common in people with pulmonary hypertension (PH), especially for those living in Asia, a review of...

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Ferrer Will Market Tyvaso for PH-ILD in More Countries

  • 3 years ago

Ferrer has acquired exclusive rights to commercialize Tyvaso (inhaled treprostinil) for the treatment of pulmonary hypertension associated with interstitial lung...

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Rare Disease Day Panel Opens Window to Patient Experience

  • 3 years ago

BioNews, the publisher of this website, hosted a virtual panel discussion on Rare Disease Day 2022, taking a deeper dive...