Get in Touch

Address

06 Mymen KR. New York City

Phone

+02596 5874 59857
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Educational website offers resources for people with PH

  • 2 years ago

Team PHenomenal Hope — Team PH — a nonprofit organization seeking to raise awareness about pulmonary hypertension (PH), has launched...

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Use of PADN device lowers risk of clinical worsening with PAH

  • 2 years ago

Treatment with Pulnovo Medical’s pulmonary artery denervation (PADN) device significantly reduced the risk of clinical worsening among people with pulmonary...

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Mental health must be part of the rare disease awareness discussion

  • 2 years ago

Mental health stigma can feel sharp, like a splinter in your thumb or a paper cut. The stigma is so...

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On Rare Disease Day, let’s raise awareness about caregivers, too

  • 2 years ago

If you can do the following things simultaneously then you are rare! Speak up and listen. Learn while you teach....

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Dipyrone, a painkiller, may work to treat pulmonary hypertension

  • 2 years ago

People with pulmonary hypertension (PH) who took dipyrone to help manage pain were at a significantly lower risk of assisted...

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AER-901 development program will include PH-ILD

  • 2 years ago

The development program of AER-901, Aerami Therapeutics’ inhaled formulation of imatinib, will include pulmonary hypertension associated with interstitial lung disease...

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C75 treatment may help reverse PAH processes, preclinical study finds

  • 2 years ago

Treatment with C75, an inhibitor of an enzyme called fatty acid synthase (FAS), partially reversed disease processes in a mouse...

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Why I help bring light to the social disparities PHighters face

  • 2 years ago

“I often wished that more people understood the invisible side of things. Even the people who seemed to understand, didn’t...

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Why you should focus on patient and caregiver self-care today

  • 2 years ago

Physical, emotional, and mental exhaustion are common symptoms of pulmonary hypertension (PH) and caregiver burnout. Many of us will keep...

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Balloon angioplasty could be effective CTEPH treatment option

  • 2 years ago

Pulmonary endarterectomy (PEA) and balloon pulmonary angioplasty (BPA) — two treatment approaches for chronic thromboembolic pulmonary hypertension (CTEPH) — significantly...

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Apelin-17 levels may be used for IPAH diagnosis, study shows

  • 2 years ago

A peptide called apelin-17 may be used as a diagnostic biomarker for idiopathic pulmonary arterial hypertension (IPAH), according to the...

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Reflecting on the things that make pulmonary hypertension rare

  • 2 years ago

In the spring of 1999, at the age of 3, I developed a hoarse voice. My mother thought that maybe...